Dear Kylie, Here you are at your 19 week morphology scan. The scan you were terrified about, because it was at that stage in your last...

Musa He was born on 14 April 2017 via emergency c section when the doctors struggled to find his heartbeat. Shortly after birth the...

Toby, is the youngest brother of three and refuses to be left behind, watching him shadow & copy his brothers & get out of his comfort...

Arlee Grace was born at 33w+6d in Sydney at Nepean Hospital. She spent 6 weeks in the Nepean NICU before being transferred back home to...

Bella is an almost 5year old little girl with Down syndrome, she loves to sing, dance and she loves life, she brings our whole family so...

While the words, setting and journey may differ, every parent of an individual with Down syndrome experiences this moment; the moment you...

Dear Tyronne, You just found out your son has Down Syndrome. You are overwhelmed with everything as it is and finding out your son has a...

To Jen and Pen, I know you’re scared. I’m sorry that you were told the news at your doctors office that your baby had “Mongoloid”. That...

Dear Me, I’ll never forget the day like it was yesterday... It was Monday the 20th of April 2020 and I had been asked to do a...

So you have just been given some news which has left you feeling pretty devastated and in shock. Your whole world now feels like it has...

Hey you, You did it! After a seemingly endless uneasy labour she is here, safe and sound sleeping sweetly in your arms unaware of all the...

To Claire, Me, when I first received the diagnosis that my unborn son would be born with Down syndrome. Hi I’m not going to ask how you...

Dear Quyen, She is curious. She is exploring. She is always on the move. Her tiny hands and feet are fluttering with activity, so much so...

Lam, Today, you will receive the test results you had been fearing. The words spoken by your Genetic Counsellor will crush you. Evalyn...

31 October 2005 Dear Julie, You are standing in a room surrounded by friends and family at Phyllis’ wake. Your mother-in-law was so...

Dear Anna (9), Macy (7) and Kira (5), When we received Owen’s diagnosis at four days old, our immediate thoughts were of you, his...

Dear New Mumma, Earlier that day, you were elated at seeing your beautiful baby during your 20 week ultrasound, he was the most gorgeous...

LETTER TO MYSELF ON DIAGNOSIS DAY – 19 years ago. Dear Vanessa, This is going to be a wild ride so strap yourself in and hold on tight....

A Letter to Me, My beautiful daughter Adia, you are almost 9 years old and I wish somebody had told me….. As I cried my eyes out alone...